My Heart's Outside My Body

Awesome!! glad to have you back blogging! more p...

2012-03-21T12:03:21.446-07:00

Awesome!! glad to have you back blogging! more please!

I have no idea what you're talking about Erica...

2011-09-03T07:03:59.390-07:00

I have no idea what you're talking about Erica lol ;)

Confessions: thanks for the comment love! have you checked out chromosome disorder outreach? If you register they send you names and email addresses of similar karotypes. If they don't have anyone on file they'll keep your info in case someone happens to join in the future.

I just have to tell you I'm so glad you're...

2011-08-31T20:06:46.296-07:00

I just have to tell you I'm so glad you're back! I have absolutely NO doubt you love Madison just as much as Hubster and I love Hopper and Scooter! They're a lot older than little Madison, as they're 18 and almost 21, but I can honestly say that I wish I'd have had the opportunity to vent frustrations, fears, anxieties, etc. when they were Madison's age. If I had, I might not be in the mess I'm in now. So blog, baby, blog!! It's good for you to get your feelings out. To acknowledge them. And most importantly, little Madison knows that she turns your world and that you love her more than life itself!! :)

And I can't tell you how glad I am that you found other families with similar unbalanced translocations. We've yet to find any that are very similar to ours, and it can be a lonely place to find oneself.

If you ever want to talk....you know where to find me. :)

Grandma thinks she is the most precious little gir...

2011-08-31T16:11:55.059-07:00

Grandma thinks she is the most precious little girl she knows and loves her to pieces.

hmmmm, who might have turned her into a coconut M&...

2011-08-31T16:05:27.227-07:00

hmmmm, who might have turned her into a coconut M&M addict?

and her daddy loves her too!

2011-08-31T14:47:41.545-07:00

and her daddy loves her too!